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Writer's pictureMaggie Babson

wednesday~june 19th~7:26pm

Updated: Jun 30, 2019

Bloating is the fucking worst. My body has fully reminded me how much it dislikes me through the use of this hellish belly symptom. But, I'm a warrior so even though I look and feel like Humpty fuckin' Dumpty, I still managed to make it to my college orientation. As I'm sure you've gathered that means I've left the hospital, thank fuck. I was just about to completely lose my shit in there. Sorry I'm a bit heavy on the swears today, my stomach has been all out of whack and I'm actually in a lot of pain. Anyway, COLLEGE! Despite my questioning whether or not college was for me, orientation painted a pretty dope version of my year next year on the Endicott campus. I'm finally starting to feel like college is something I can tackle. I just have to make sure that I control my CF instead of CF controlling me. Before all that though I did actually manage to kick off summer with some fun. I got to see Billie Eilish here in Boston at the Rockland pavilion. It was nice to just let go and dance for a night. I want to make sure I'm writing about the good times just as much as I write about the bad. It's not all doom and gloom and swear words here. Now that I've gotten a better feel for college, I know that I have to really commit to my health to make this work, so tomorrow me and my parents will be visiting a new CF clinic. I'm not sure if I'm ready to switch primaries yet, but as I transition to the Children's hospital adult program, I want to make sure I'll be getting the best care possible. Being an adult with CF is already going to be hard enough, my care should be as vigilant and at times creative, as possible. I say creative because it's so easy for doctors to get stuck on a merry-go-round of the same routine, but sometimes you need to shake things up a little and try something new. Recently, I've found so many new reasons to fight this disease. I love life and I don't just want to survive. I want to LIVE. I think that a truly happy life is right around the corner from me and I'm not going to miss it for anything.


 






 


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